Becky I have been looking for your posts. I’m not any better. I’ve run through everything but I sit back and say I don’t want the total colectomy. Since I have posted I have tried to see motility doctors of a different gastro. It’s so bad than you can be this sick and they can say I have nothing for six months. It just leaves me hopeless. If been thinking all my time at Brighams with the Gastro doc he never once had labs ordered. I would always ask my pcp. My pcp found the pancreatic cysts 6 months ago and he has booked a six month mri because I have no appointment till January of next year with a pancreatic specialist. What if it’s something serious, it just doesn’t matter because you can’t get an appointment. I want this problem looked at before January 19th surgery if im even doing the surgery. I changed Gastro docs and see the new one December 23 that took six months. We have chatted briefly through portal but yesterday she writes Joanne I think you need a motility specialist, really. What is wrong with doctors. Im so upset that for months im treating myself along with my pcp but he keeps saying you pushed out surgery but we can’t get you into anyone to dig deeper. I guess you need to be closer to dying for anyone to take notice. Im so tired of medical and their cavalier attitude about just sit and wait or go to the ED if you get really bad. Well I hope you read this. Im stressed beyond belief because I canceled and hoped to look deeper into this severe motility issue but I can get help. So sad…Joanne