I'm overall worse than I was before the 2nd surgery. I don't have the deep sharp pain anymore, but I have other pains in my chest, ribs, and back that varies from day to day. I'm unable to do even light theraband exercises because it makes me hurt worse, to the point that I started to need half an oxycodone at bedtime. So I have no muscle tone in my upper body. I can only sleep on my back, because if I roll onto my sides I wake up hurting in the middle of the night. I can hike (which is one of my passions) but I start to hurt when my heart rate is high. Every night I have a routine of supplements, stretches, icing, and CBD lotion to get pain under control so I can sleep. I've recently started taking nortriptyline in addition to trazodone and gabapentin. It does help some. I'm on a leave of absence from work because of all this.

As for my stomach, it was 100% perfect for about a month after surgery, then I started to get "morning sickness" again that would wake me up with nausea and feeling like I needed to throw up. I was diagnosed with gastritis and put on a PPI which I'm still on. If I stick to a very careful, easy to digest diet it does okay but I still have some bad mornings, especially if I accidentally roll over on to my side while sleeping.

I've already called a pain care specialist I had just visited, because he offered me another celiac plexus block. That seems like an important step, to see if it relieves some or all of the new pain I have. I'm really concerned about how high the arterial velocities are, especially since both celiac trunk and SMA are involved. Where am I getting collateral blood supply then? I also think I need another CTA done (with proper breathing protocol this time) to see if there's still external compression involved here. I would favor bypass surgery if it has a better chance of eliminating this problem forever.

Thanks for replying!

If I remember correctly, you had revascularization done?

I’m Ralph, l am a new member, l have mals described in a written CT scan during a life emergency surgery where the UCI surgeon removed a part of necrotic intestine. Also in another CT scan evidenced the same condition. I have had many tests done, but would like to be admitted to Mayo Clinic Arizona and let them take over, since ucla and UCI of Calif. really have not the Vascular surgeons to do this ligament decompression. I’m telling my story for any one and you for help. I have been bedridden with this disease undignoised for 22 years, on TPN, with severe chronic pain. When l called Mayo they gave me an lD patient number, but unable to give me an appointment. How can l find a way into Mayo and be medically evaluated and if need be have surgery. This brings me to the ? can you explain not having vascular surgery because the numbers are too risky ? If you or anyone else has had this median arcuate ligament release surgery, l would like to know what is involved start to recovery. Thank you for listening to me, and l wish you the best during your journey back to health.