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Treatment options for Dysautonomia

Autoimmune Diseases | Last Active: Oct 3, 2022 | Replies (47)

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@becsbuddy

@abrown2 oh, I’m so glad your son went to Children’s Hospital. Did he feel comfortable with the doctors and the things they were telling him?
Sending best wishes and hoping you’ll keep us posted.

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Replies to "@abrown2 oh, I’m so glad your son went to Children’s Hospital. Did he feel comfortable with..."

Yes, the trip to CHOP was very positive. Things may be moving in a diagnostic direction thanks to a variety of phone calls to a specialist at Hopkins, tests run at home, along with requests from CHOP. We may finally be on our way. It looks like some sort of Mast Cell syndrome is the culprit. Nobody mentioned this until the Dr. from Hopkins. Still testing to confirm.🤞. Just getting a name and path to managing this is what we have been looking for all these years. I was told directly by Mayo that they do not treat this condition. thank you for your care. It means a lot ❤️🙂