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Forteo vs. Tymlos: Which did you choose?

Osteoporosis & Bone Health | Last Active: 15 minutes ago | Replies (629)

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@contentandwell

@windyshores I think if doctors suggested starting low it might cause people to fear the drug more! They would immediately think there must be something to worry about if they start with a full dose.

Having seen on here that many people do go with a lower dose and work their way up if they have a negative reaction initially, I asked my endocrinologist if I should start low and she said no.

I think it's better probably that if you do have a difficult reaction to inform your doctor and then the doctor could suggest backing off on the number of clicks. If the patient is like me and like many people on Tymlos though, they will be fine with the full dose from the start.

You do mention headaches a while after which has me wondering because I do my shot before bed and on most mornings I wake up with a headache but it does go away shortly after arising. I wonder if Tymlos might be the cause of it. It is such a minor side effect though that it would not cause me to stop using Tymlos. It would just be nice to know what the cause of the headache is.
JK

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Replies to "@windyshores I think if doctors suggested starting low it might cause people to fear the drug..."

I had three doctors tell me I could start low, but that was after I landed in the ICU after my first few shots at half dose. Full dose was impossible for me: I got really sick but even a few days of half dose, I believe, threw me into afib and tachycardia lasting 7 hours.

Mine is a special situation. But I have two friends who just quit Tymlos due to side effects at full dose. I think in those situations docs and company should suggest trying to get your body used to it gradually. I believe there are a lot of people quitting unnecessarily.

My doc told me that 6 clicks is definitely enough to be effective, and even told me he would be happy with 4. So that is the other issue: the idea that it has to be 8 clicks to help, so people quit when they cannot do 8. I am doing 7 as much as I can tolerate, and 6 the other days.

I have no idea why any doc would say no to starting low.