← Return to Sjogren’s Syndrome – Introduce yourself and meet others

Discussion
Comment receiving replies
@jmb73

Hi everyone, I was diagnosed with Sjogrens over 30 years ago. My rheumy sometimes runs blood tests- SSA & SSB. A few times they are negative for Sjogrens. He said that happens a lot and most docs treat the symptoms. I have a lot of pain from Sjogrens and severe fibromyalgia. On the positive side, I am 77 and have had Sjogrens symptoms since I was a teenager. So it does impact your life but you can still live with it. One thing that I recommend is if you get a flare, try to give into it as usually it will go away faster. Also, try to have a positive attitude. I use THC on my joints. I use a q-tip to put it on and it really helps. CBD might work too. I use the Biotene products for dry mouth. My dentist told me that most toothpastes have a drying agent in them but biotene products don't. I use the gel for mouth sores and the spray for dry throat so I can take my pills. I am immune compromised and have AFIB plus severe osteoarthritis and a brain tumor, so I can't take any of the usual meds. So I try natural or over the counter meds like Systane ultra drops and Genteal for severe dry eye gel. I hope this helps. Joan

Jump to this post


Replies to "Hi everyone, I was diagnosed with Sjogrens over 30 years ago. My rheumy sometimes runs blood..."

I commend you for your strength and perseverence. I have not been diagnosed with Sjogrens yet but take Restasis. It is very expensive and would prefer to take Systane. Does Systane help you dry eye alot? Thanks, Lynnie