Hello @maslowth and welcome to Mayo Clinic Connect. I see that this is your first post on Connect. I can certainly understand that you would like to have some answers and a diagnosis so that a treatment plan can be in place. On Connect, however, we are not medical professionals, but patients like you who share experiences and offer support.

If this were me, I would certainly seek out a second opinion. It would probably be best to visit a multi-disciplinary health care center like a university medical facility or a place like Mayo Clinic. In these facilities, there is a lot of research and therefore, they are better able to deal with hard-to-diagnose problems.

If you are comfortable sharing more, @maslowth, what symptoms are bothering you now?