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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: Nov 23 5:30pm | Replies (573)

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@artscaping

Good evening Robyn, @boltz7555. That's quite a story and thank you for sharing. It does sound like you ae reaching the end of the diagnostic phase. Will you please continue to share the results from your neurologist and the impact of any treatments that are recommended? This will help the virtually hundreds of folks who will read your continuing story. I am hoping that you will discover the value of a shared partnership with your clinicians and providers.

May you be free of suffering and the causes of suffering.
Chris

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Replies to "Good evening Robyn, @boltz7555. That's quite a story and thank you for sharing. It does sound..."

Hi Chris @artscaping - yes absolutely, thank you. There is another thing I want to mention, as I am not sure if it’s of any significance or not but really helped me. About 5 years ago, my primary ran some bloodwork and found I was significantly deficient in vitamin D3. She put me on a mega dose (50k IU’s) and after just the first dose, I noticed a huge improvement in the constant arm pain I had experienced for 6+ months. I thought the pain was a pinched nerve, perhaps stemming from my shoulder but scans showed no issues with my shoulder/arm. I now believe it to be nerve pain from neuropathy. Vitamin D wasn’t a cure but having healthy vitamin D levels certainly helped my pain and depression. Something for others to look into, although it may be a “standard” thing to look for in patients. Regards, Robyn