← Return to (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
Discussion(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Replies to "Hello All..I have come across an excellent article from National Jewish Health on how to reduce..."
@alleycatkate Thanks, very interesting read!
@windwalker sorry I can’t find that discussion Board! Not too good with this site but i’m learning lol Nick
@nick52, if you scroll to the very top of this thread page you will see highlighted in Blue Letters; 'Mac and Bronchiectasis Group', a page should pop up with the picture of two women facing each other on the cover page. Underneath that image is a blue tab bar. The first tab says 'Discussion'. I would like for everybody to explore this site more so that you are exposed to more resources.
I'm having problems with vomiting and weakness. I couldn't take Rifampin because I was vomiting and now on moxifloxacin and vomiting again. Have no appetite. Also on clarithromycin and ethambutol. Any suggestion
My husband has re-started taking Azrithmyocin, Rifampin and Ethambutol. He gets diarrhea but the Infectious Disease doctor said as long as it does’nt get worse, to continue. He is taking the drugs following a solid meal after lunch and dinner. That seems to help quite a bit. He also does not have much of an appetite but he is able to force food down. I fix him whatever he is hungry for. He was already weak so I can’t say the drugs have caused weakness. Try your favorite foods and then take 1 - 3 pills following that meal and then the next solid meal, try the remaining 1 - 2 pills. My husband takes 4 pills per day. I hope this helps you.
@mary1944 This is a post that @suzie2017 recently posted. "My husband has re-started taking Azrithmyocin, Rifampin and Ethambutol. He gets diarrhea but the Infectious Disease doctor said as long as it does’nt get worse, to continue. He is taking the drugs following a solid meal after lunch and dinner. That seems to help quite a bit. He also does not have much of an appetite but he is able to force food down. I fix him whatever he is hungry for. He was already weak so I can’t say the drugs have caused weakness. Try your favorite foods and then take 1 – 3 pills following that meal and then the next solid meal, try the remaining 1 – 2 pills. My husband takes 4 pills per day. I hope this helps you."
@mary1944 I am so sorry that you are experiencing so much nausea with your meds. I put nausea up there with toothaches - no fun. Every body reacts to the meds differently under various circumstances. Try playing with your med schedule until you find what works. Some members have said that taking them on a full stomach helped, while others have said taking the ethambutol first thing in the morning on an empty stomach helped. One causes insomnia, so take that one early in the day. If you scroll to the top of this page, you will find a blank box with the word 'search...' ; type the words 'rifampin, clarithromycin, etc. in there or other key words and related posts will pop up for you to read. Let me know if you have trouble doing that.
@mary1944 no appetite it could very well be a liver congestion. Your liver can also have problem digesting the antibiotic med. it is very hard on the liver. No test exist to detect a congested liver. Try Milk Thistle to help your liver for at least 30 days.
The best is Hübner Milk Thistle in liquid. You can use Clear Lungs from Ridgecrest for decongestion of the lungs. For weakness you may want to try Whey Protein ISOLATE it has to be an ISOLATE whey protein. Vials of Ginko biloba is good for energy and has
Windwalker sayGiseng if your health permit! I will keep you in my prayer for you to find the best solutions. Practice meditations to relax! Nick
I can't find this.
@alleycatkate There is a list posted on the Discussoon Board about all of the ways to avoid catching mac and avoiding reinfection. I feel like people are not visiting the Discussion board where there is a wealth of info. But, on the other hand, this post is a great intro for newcomers, & reminder for us 'old-timers'. I am delighted, Kate, that you are digging for info.!