I was put on Gabapentin for a pinched nerve in my pelvic area by the Spine Clinic dr. I took 3 capsules a day, 300 mg. About a year later I started having the burning pain in my feet. Went to several drs & ended up at the Pain Clinic where this dr put me on max dose of 4-4-4, 300 mg ea daily. I decided to try to wean myself down, but can only go to 3-3-2. I still have terrible burning pain. I had measles encephalitis when I was 4 yrs old, had a grand mall seizure & went into a coma for several hours. I was in the hospital for a little over a month, along w/ about 9 other children who had gotten this same thing. Three that I know of died. As a result, I was diagnosed w/ epilepsy & took Dilantin up until I turned 12 yrs old, so took it for 9 yrs. I had EEG’s every year & I stabilized & didn’t have to take it anymore. When I told the Neurologist about this, he said just from the Dilantin I would have lost 15% of my nerve function. At age 40 & every decade thereafter, you lose 10% of your nerve function. I’m 64, so I’d have 45% nerve function. He acted as if this was probably a big factor in why I have SFN. Wouldn’t wish it on my worst enemy! I’m trying to restore my nerves by doing physical therapy w/ a Re-Builder and Infrared Calf & Foot wraps. I can’t use the massager that was also a part of PT, even w/ a pillow on top of it, within a minute my feet feel like they’re getting rug burn. So I have 1 1/2 hrs each morning & each night. It really helps, but then I got my 2nd Covid Vaccination (Moderna) & by afternoon, my feet were on fire. I thought it would be temporary, but it wasn’t. It’s been several months and somehow put me back to square 1. My regular dr said not to get the Booster.
I have had memory problems, and I met a couple who told me to wean myself off of the Gabapentin, calling it Gabapentin brain. The husband was on it & he thought he was getting dementia. He weaned himself completely off of it & his memory problems went away. Anybody else experience this??