It’s great you’re getting a medical review from Mayo! Just have everything ready and have a list of questions. I hope you can get some more targeted answers.
You’re so right, not all generics are the same. The binders and fillers can make enough difference to mess with us.
I’m so sorry you’re not having the follow through with your nephrologist with education on your disease. Tacrolimus is used for MCD if steroids don’t work. But if the level in your blood is too high it can also reduce the amount of blood flow through your kidney. This is all from personal experience. 😉. So it’s really vital that your doctor knows what a minimally supported trough number should be for you. You’re not a transplant patient so the amount in your system wouldn’t be at a organ rejection level. Just enough to reduce the proteinuria associated with your disease. Good questions for the Mayo team.

What are your kidney function numbers like? Bun, GFR/Creatinine?

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