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codered032 (@codered032)

When is it time to change care to a Gerontologist?

Aging Well | Last Active: Jun 11 9:28pm | Replies (26)

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@loribmt

It’s great you’re getting a medical review from Mayo! Just have everything ready and have a list of questions. I hope you can get some more targeted answers.
You’re so right, not all generics are the same. The binders and fillers can make enough difference to mess with us.
I’m so sorry you’re not having the follow through with your nephrologist with education on your disease. Tacrolimus is used for MCD if steroids don’t work. But if the level in your blood is too high it can also reduce the amount of blood flow through your kidney. This is all from personal experience. 😉. So it’s really vital that your doctor knows what a minimally supported trough number should be for you. You’re not a transplant patient so the amount in your system wouldn’t be at a organ rejection level. Just enough to reduce the proteinuria associated with your disease. Good questions for the Mayo team.
https://nephcure.org/livingwithkidneydisease/treatment-options/tacrolimus-prograf/
What are your kidney function numbers like? Bun, GFR/Creatinine?

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Replies to "It’s great you’re getting a medical review from Mayo! Just have everything ready and have a..."

BUN 15 Creatinine 1.0 eGFR 66 eGFR 57 glucose is a little high 110 but I am working on it. It’s down from 141. My diagnosis is MCD. My labs have always been good for “my age🤪”. Except for proteinuria. Tacrolimus side effects is the problem. My level was drawn today Waiting for the results. I ask the pharmacist today what were symptoms of toxicity? I checked off 4-5 of the major symptoms. Now I am concerned that my Dr may discontinue Tacrolimus instead of reducing it. I have a phone interview with Mayo Clinic Thursday. I am also trying to get into a level 2 study. Thank you for reaching out

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