Thank you so much for your concern. My son is the same. He just returned from CHOP (Children's hospital of Philadelphia) last week. It was good to have new Dr.'s evaluating his symptoms, but no diagnosis or anything yet.
Currently we are one a waitlist for Mayo. We have been on the list to schedule an appointment since late June. Once they finally book him, it will be a year. Being seen at Mayo right now is a low priority because we do not have year.