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codered032 (@codered032)

When is it time to change care to a Gerontologist?

Aging Well | Last Active: Jun 11 9:28pm | Replies (26)

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@loribmt

Hi, @codered032 I’m jumping into your conversation a little late. But the mention of Tacrolimus caught my attention. Does your PCP have you on this medication to use as an anti inflammatory drug for your kidneys?

From experience, this is an excellent drug but very strong. It also requires frequent Tacrolimus trough levels in your blood because it can cause serious damage to your kidneys and cause other serious side effect. Trembling and generally feeling ‘awful’ can be a good indication of too much in the blood stream. It’s also important to take magnesium with this as it can deplete the body of magnesium quickly. Instead of magnesium citrate you might consider a daily Magnesium Glycinate supplement. It’s easily absorbed and doesn’t cause intentional issues. The product is sold over the counter but you should check with your physician. I whole heartedly agree with @gingerw with looking for another provider.

If you don’t my asking, who put you on the Tacrolimus and the prednisone? Were you seen by a nephrologist? (Kidney specialist).

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Replies to "Hi, @codered032 I’m jumping into your conversation a little late. But the mention of Tacrolimus caught..."

Just a reminder….there is also a topical Tacrolimus for "itching". I can use ii twice a day and no more because it makes your skin become thin. I also save it for my MFR therapist to use during a session. Guess this is just dicey stuff. It is also quite expensive…..about $150 for a tube of it, the size of toothpaste.

Chris

Thank you for jumping in! My nephrologists has not provided much education. I think I am his only patient with MCD. His patients are mostly ESRD and dialysis. Also the insurance companies only allow 15min per total visit. I think my dr is capable but lack knowledge about my dx.most of my understanding has from my own research and being actively involved. I have to ask for routine Tacrolimus levels and when I ask specific questions, his answers are vague. I have learned that all generic Tacrolimus are not equal. There is one manufacturer that I really cannot tolerate but the pharmacist can only provide me with which ever one is the cheapest. I am at the mercy of the drug company 😢! I have requested a file/medical review from Mayo Clinic. That is scheduled 11/02/21. Wish me luck!

Thank you for information on Magnesium.

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