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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@tigreyes2004

Thank you so much for your story. It is something to think about.
I am a Christian & I pray daily also. I am in so much pain that I am ready to do it. I have no quality of life lately.
My condition has gotten worse. I am also 71 with underlying conditions so that is why I am worried too.
How was your recovery time? That is what I am worried about.
Do you happen to know if Medicare will provide a hospital bed when you go home & did you have to go to rehab?
Thank you so much for your help.
God Bless You
Tigreyes

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Replies to "Thank you so much for your story. It is something to think about. I am a..."

I can only speak to my situation, but hopefully it will help. I didn’t go to Rehab and am glad, because the surgery and 2-3 hospital days did knock the stuffing out of me, plus I had pain from the incision. I’m not sure your surgeon would want rehab as there you’re expected to participate in vigorous therapy twice daily. I did insist on a referral to Home Care for Nursing (wound management and pain management), PT, and OT. The nurse came the day after I got home. I received home care for 2 weeks, then went to Outpatient PT.
I worked as an Occupational Therapist in Home Care before retirement, so I knew what I needed to get set up at home before the surgery. Everything that follows I bought on Amazon, but a local medical equipment company would have these things.
A hospital bed is not needed, but I bought a Medline Bed Assist Bar with storage pocket (a piece slides between the mattress and box spring, gives you excellent leverage to come up to sitting with ease), a bedside commode (I used at night at bedside for a week, so I wouldn’t have to try to manage the walk to the bathroom and back, during the day, if you have someone to help move it, you can place over your toilet- without the bucket-to make you higher and you have the armrests to help lower yourself onto the seat and push off from to stand up). I also got a shower chair with back (no armrests) and had grab bars put in the tub/shower- vertical at the entrance, horizontal on the far wall (Amazon “designer grab bars” section), and a handheld shower attachment. I also bought a Misslo 8 Pockets Shower Organizer Hanging Caddy with Rotating Hanger. I hung it on the horizontal bar within easy reach of the shower chair. I used this combination to shower for almost 2 months. The OT was very helpful to go over the tub/shower transfers with me.
I also bought 2 large packages of moistened “washcloths”, you can find them in the adult incontinence aisle- I washed up with them, what I could reach, until cleared to shower. They felt really good to freshen up.
I didn’t use anything to help me walk before surgery. Afterward I needed a rolling walker (provided at the hospital), the Home PT was really helpful in teaching me how to use it, then advancing me to a straight cane by the end of 2 weeks. Medicare will pay for 1 assistive device in 3 years, so the hospital arranges for the walker and you buy the cane (walkers are a lot more expensive). I borrowed an adjustable cane. I used the cane for maybe 4 more weeks. I found that with a cane, people notice and give you a wide berth. I didn’t want anybody knocking into me, jostling me in a crowd. The PT also set me up on a light home exercise program.
My husband isn’t much on cooking, so I bought TV dinners ahead of time (there are healthier choices now), bought breakfast bars, protein drinks, etc- everything easy for me to grab or him to bring to me- I spent the first week mainly in my Lazy-boy!