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MAC: Just how well do nebs work, anyway?

MAC & Bronchiectasis | Last Active: Feb 7 5:44pm | Replies (88)

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@sueinmn

I agree Raney, all the medical personnel are very busy now, but that is not a very good long-term excuse, in my opinion. It only takes a few sentences in an email to explain what it means, and whether there is cause for concern, or just continue monitoring. They have to write it into your patient record anyway, so it could be sent to you as well.

In the past 2 months, I have been seen in3 different health networks, in the ER, by my PCP, gastro, gastro nurse, nuclear med, surgeon, hand doc and had surgery. In addition, I had a mammogram and EKG. In EVERY case, there has been an explanation filed and shared with me, by each doc or their staff, on every test and procedure.

I think if I were in your place, I would become more insistent about getting information communicated to me by the doc or their staff. Sometimes a few phone calls will lead them to do a better job at communicating.
Sue

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Replies to "I agree Raney, all the medical personnel are very busy now, but that is not a..."

I changed pulmonologist and PCP 10 months ago because they were not sharing or explaining and some of the things I could not see on the electronic medical record. I mentioned the issue with the pulmonologist practice that I switched to. Nothing has been posted in the patient portal of the electronic medical record since Feb. I FINALLY had them to mail the summary for CT scan and still waiting on final results of last sputum. I contacted UNC-Chapel Hill this past Friday for an appointment there ASAP. Hope to hear back this week.