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MAC & Bronchiectasis | Last Active: Nov 21, 2024 | Replies (9354)Comment receiving replies
Replies to "Hello Girls, I am new to your forum. I am a 56 year old diagnosed with..."
Hello. @brigby how did they find the MAC in your sinuses? I have only heard about one other case of it being there. You take care! (Irene)
@brigby absolutely. Always get second and even third opinions and options.
@irene5 LOL I’m even glad to hear of ONE other case of m. abscessus in sinuses! They have cultured it out now twice, at a 4+, at Stanford, though endoscopy.
@brigby Hi there, and welcome to Connect. Wow! I had not had anybody on this site that had this mac business in their sinuses too. They probably are, but had not had their sinuses tested. I am impressed with Stanford in that they didn't automatically put you on the 'Big 3' and that they have you on the nebulized saline. That tells me that they are on the ball. I love the Mayo Clinic in Jacksonville, Fl. They def turned my life around. BTW, I love your spirit; that will take you a long way with this battle with this disease. I am so glad that you found this site.