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What can cause ANA titre of 1:2560?
Autoimmune Diseases | Last Active: Jan 12, 2023 | Replies (111)Comment receiving replies
@daisydo It's tough enough dealing with an autoimmune disorder. But to hear "but you look fine" "you don't look sick!" can be discouraging and frustrating, especially when it comes from a trained medical professional. I have heard that from doctors and nurses! I was diagnosed in 1988 with Systemic Lupus and have fought long and hard to advocate for myself. For 20+ years they attributed my super high protein levels to be related to the lupus, until an interested dr and then a nephrologist decided to look into it further in late 2014 and found I had a rare kidney disease! Like you said, the damage was done by then.
Ginger
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@gingerw, @daisydo. I had several high ANA readings and several bouts of pleurisy and pericarditis in 1977 and was ultimately diagnosed with lupus by an internal medicine specialist. There were five years or so of fairly serious lupus symptoms. I was working full-time as a Legal Secretary and single parent to three young sons. Hard times! Eventually I began to feel better and the specialist then termed my illness as "twilight lupus". When I tell my current doctors that, they smile quizzically and say they've never heard of it! I now have about four autoimmune diseases but no doctor has ever checked my ANA reading to see if lupus is still lingering in the background, even though I've (politely) requested the test. I guess it doesn't really matter anymore what I have. All my docs say I'm a very complex patient! Sending my best to you. Laurie