← Return to Have Bronchiectasis, recently diagnosed with pseudomonas

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@raney

Your path to to being diagnosed sounds a lot like mine. I had terrible chest congestion, coughing constantly day and night tan or green tint sputum about 2 1/2 years ago. before that I would get so that I could not breath when exercising. Explained all this to my PCP. I thought it was my heart causing the breathing problems and the coughing was a bad case of bronchitis. I asked for antibiotic on 2 different occasions & the PCP ordered for 5 days or 10 days. I finally asked for referral to a pulmo., He ordered a sputum culture, CT scan, pulmonary function test. sputum showed couple of different fungus, but he said they were common and everywhere and nothing to worry about. So every day I kept thinking tomorrow will be better! I did not know the meaning of the word bronchiectasis ! Got pseudomonas.
I changed PCP & Pulmo practice and have been to pulmonary specialty clinic and a teaching hospital. I now have smart vest, nebulizer, Aerobika and meds for neb. What I would like to know is what stage I am in.
I have not been able to cough in months! Very difficult to get a sputum spec. I very seldom feel air going deep into my lungs. Taking meds now for thrush in my mouth and esophagus. Now I have come to the rude awakening that I am not going to be well tomorrow without a miracle from God.

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Replies to "Your path to to being diagnosed sounds a lot like mine. I had terrible chest congestion,..."

I'm so sorry you are going through all this.

If I remember correctly, you are taking budesonide after nebbing. Budesonide is a steroid and probably caused the thrush you have. Even carefully rinsing your mouth after using it does not always prevent some if it remaining snd steroids provide an environment where thrush can grow. They also provide an environment where bacteria grow and our doctors do not want us inhaling it.

Frankly I was surprised your doctor prescribed it knowing you have bacteria in your lungs.