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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 8:38am | Replies (1879)Comment receiving replies
Another update. I dropped to 4mg (from 5mg) last Monday and am noticing more, I’ll call it discomfort, in several areas now. I have had a constant with my R knee and L shoulder but now having both shoulders, hand/wrist pain and some minor back discomfort. I will tough it out and see how I go, but, if it gets worse, then back to 5mg I guess although I may try doing 4.5mg. I have been doing a 1mg drop every five weeks from 10mg.
Replies to "Another update. I dropped to 4mg (from 5mg) last Monday and am noticing more, I’ll call..."
Same here, I was on 5 mgs for the last six months. Dropped to 4 on October 1st. Pain is creeping back in both shoulders and neck. Definitely not dropping any further any time soon. Planning on calling rheumatologist on Monday just to let her know. Plus my sediment rate has never really come down - it was 86 when first diagnosed - last blood work in September showed 68 so I still have inflammation somewhere .....
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Down Under, I have a very similar situation. Now on 2.5mg and the old aches and pains are creeping back. I am careful in my reductions but I think I have a wall. The old war wounds are flaring. Knee and lower back mainly. I am always concerned that these areas are just that, old war wounds, from years of soccer, tennis, golf. I feel I will have to find a happy place around 5mg/day and stay there. Its a case of balancing off, how many good years of golf do we have? Do we struggle with pain every day? I am in Canada and the consensus is to get off it, the dreaded Pred. In UK my brother is stuck on 5mg and thd docs say to just stay on 5mg. Admittedly he is now 86 and that may be the decider.
Good luck with your decision.