@rits Amen, sister! Well said! (I was biting my tongue) @raney ...where do you live? Are you near any Mayo Clinics? Speaking in generalities....but they seem to offer excellent guidance and treatment. Since this is not a run-of-the-mill disease, it is often difficult to nail down a good Pulmonologist that knows what they are doing or even has experience in this area of lung disease. My local Pulmo vs Mayo Clinic was a night and day experience. Get the best Doc that you can. Kate