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DiscussionPancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 18 hours ago | Replies (1379)Comment receiving replies
Replies to "Hello, my name is Cindy and my husband was diagnosed with Stage 4 Pancreatic Cancer in..."
Hello @cindysavant and welcome to Mayo Clinic Connect. I can certainly understand the concern you have shared about your husband's treatment plan. Have you considered getting a second opinion? I would recommend that you visit a Cancer Center of Excellence and get a second opinion from an oncologist with a background in research and vast experience in treating this type of cancer.
Here are some websites for the American Cancer Society and National Pancreas Foundation.
https://www.cancer.org/
https://pancreasfoundation.org/about/
If you search their websites or call them they can undoubtedly direct you to some specialists in your area to assist you in determining the best treatment for your husband.
As you know, some people do have remarkable life spans after their diagnosis depending on the location of cancer within the pancreas.
Do you know the location of your husband's pancreatic cancer?
Sorry to hear about your husband. Unfortunately, folfirinox and gemcitibine/abraxane are "the standards of care" for pancan. Many oncologists won't stray from the standard even though their success rates are poor. Find an oncologist who thinks out of the box or a trial if you're dissatisfied. My wife had 9 folfirinox, sbrt, surgery (2x) and 15 gemcitibine/abraxane/cisplaten treatments. We started the tippen protocol a month ago while still doing GAC (won'tt be telling the oncologist). You have a long fight ahead. Stay strong. Good luck and prayers for your husband and family.