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DiscussionHave Bronchiectasis, recently diagnosed with pseudomonas
MAC & Bronchiectasis | Last Active: Sep 30 4:40pm | Replies (211)Comment receiving replies
Replies to "I wouldn't place too much stock in what worked for someone else. My husband & I..."
Interesting Sue. As I recall you didn't have a quick response to the antibiotics for ntm either. Ethambutol and azithromycin (I couldn't tolerate rifampin) cut my MAC to where it no longer showed up on my sputum in just two months. I stayed on the drugs for a year from the first negative for a total of 14 months and stopped all antibiotic treatment in June 2019. It's been more than 2 years of negative samples (so far and fingers crossed) and I'm hoping that I am like your husband and will have a good outcome with just one course of one antibiotic. Of course everything depends on what Dr McShane thinks is best for my nasty pseudomonas. And what she prescribed so far was a long-term inhaled antibiotic which I couldn't tolerate.
Thanks Sue. Tyler does sensitivity testing automatically and it was done with each sample. My particular pseudomonas is killed by many antibiotics both oral and inhaled. Due to severe digestive problems my doctor had me try inhaled gentomicin with saline because there is a study that shows that antibiotic works great when combined with 7%. I cannot tolerate 7% so she ordered it with the .9% that I do tolerate. However, I struggled through two weeks of it and was supposed to start it up again 2 weeks later. My lungs are very fragile and I can't tolerate being on an inhaled drug one month on and one month off or two weeks on and two weeks off indefinitely.