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Hi Jennifer. I realize this is an old post. I too Have Tarlov Cyst at S2 and S3. Have you had surgery yet? I am Awaiting consult with Dr F out of Dallas. I dont Think anyone at Mayo truly acknowledges them as symptomatic or operates on them. I have Ruled out every possible thing leaving only the Tarlov Cyst. The vaginal pain is debilitating.
Replies to "Hi Jennifer. I realize this is an old post. I too Have Tarlov Cyst at S2..."
Just curious have you had a checkup at Mayo for Tarlov Cysts?
If so, which Doctor? Thank you.
I have not been looking at Mayo for a while. After 4 years and many doctors I have just found out it must be the 2 Tarlov Cysts that is causing my vulva and vaginal pain. Thanks for letting me know you have debilitating vaginal pain. When I read about Tarlov Cysts I have not heard that they caused vaginal pain. Your response has helped. I have an MRI etc to send to Dr. Feigenbaum in Texas on Monday. I have heard that many times the operation to remove the Tarlov Cysts
works and the pain goes away. I have been to about 8 doctors in 4 years and finally the GYN who I have been going to for years changed his diagnosis from Vulvodynia to Tarlov cysts.
I hope that Dr. Feigenbaum in Texas can help.
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@rkbunn hello! I see that you have interest in connecting with Jennifer, so wanted to show you a tip for flagging that member of your interest. If you use their handle, in Jennifer's case it is @jenapower. If you use that and if that member is receiving alerts, they will be sent an alert to flag them. I hope that helps bring Jennifer back in to continue your discussion.