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@larryh123

Hello:
I am am Lewy Body dementia patient. Early onset - diagnosed at 57. Now 3 years into it.
It’s great that your wife can help with things. I get a good feelin when i feel that i have contributed.

For me - the neuropsych tests are used to
1) look at the areas of the brain that are involved - for me executive functioning is the main area with deficits in other areas which can help steer toward one diagnosis
2) track progression - I have progressed from mild impairment to moderate impairment

At some point, you have to think of putting themselves through hours of testing annually. This is on my mind as well at this point.

Stay safe and well.
Larry H.

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Replies to "Hello: I am am Lewy Body dementia patient. Early onset - diagnosed at 57. Now 3..."

Thank you for your comments.

My husband has been through the neuro-psyche testing at least three times. He dreads it for days before it actually happens. I try to help him with the anxiety and try to provide some coping skills (this is not a test to enter college- just enjoy the time you are with the testers, etc ). He did tell them he would like to skip the math portion from now on and that was fine with them and with me. As his caregiver and as a former teacher, the testing is very beneficial to me. It does help with getting a handle on the progression of the disease and takes away some guesswork of the pace of decline. It helps to find things he can do well as it identifies areas of strength and helps me to capitalize on them. It also provides ideas of how to help him cope as some skills become weaker....and it helps me to try to be more patient and compassionate...some days are easier than others. I just keep reminding myself of how grateful I am to have had the once in a lifetime opportunity to be a part of this amazing man's life. He has taken very good care of our family, and I treasure this time to be his help mate through this part of our journey.