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Facial Swelling - no diagnosis

Autoimmune Diseases | Last Active: Apr 20, 2023 | Replies (158)

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@lucamckinnon

I recently found a post while doing research that resembles exactly what I’ve gone through this past year. I thought I should share my story as well in hopes for an answer or some guidance. Since September 2020 my face has been swelling every single day lasting the whole day. It gets worse as I sleep but fades a little as the day goes by. It started out as something small but gradually got more severe until it seemed to cap at a certain point. Originally my doctor thought it may have something to do with allergies. I’ve had 2 cats since late 2018 and have never had more than a stuffy nose or small hives which was never enough to bother me. He recommended we try using allergy pillow cases and making sure my room was clean and tidy while also keeping the cats out of my room. Nothing changed and we went back again for him to recommend an x-ray and to book an appointment with an allergy specialist. The x-ray showed nothing and I went to the allergy specialist months later. He did an allergy test and prescribed me prednisone for only four days. I was allergic to cats, horses, and grass with cats being the most feint of the three. On the fourth day of prednisone I clearly noticed a difference and so did my family. He started prescribing me many different allergy medications which I was on for a couple weeks to a month straight with no success from any of them. I started to think it may have something to do with asthma considering I've always been short of breath after exercising for a small period of time. I went back to the specialist to talk about that and he gave me an inhaler and prescribed asthma related medication which never worked either. I haven't gone back and so i started doing research again. Hypothyroidism is something that runs in my bloodline and has symptoms of swelling so I decided to get a blood test which came back perfectly fine. After that I got a CAT scan which also showed nothing besides the swelling itself. Its been a couple months since any of that and my next speculation has to do with masks. The first time I ever started wearing masks consistently was the start of school in September of 2020 which happens to be when it all started. I started wearing a black cloth mask I got from my gym class since it was the most comfortable to me. Like I said previously my swelling wasn't as bad for the first few months compared to now. Around winter I forgot my mask and was forced to use the normal surgical masks provided by the school. I really liked how it fit and I knew it was a lot more safe compared to fabric masks from what I’ve heard. My swelling started to get worse but I never once thought it might have to do with my mask. I started wearing them everyday until now where Im going to switch back to a cotton mask in hopes things will simmer down. The only other thing I could possibly think of as a cause for the swelling is a terrible sunburn I got in mexico around April 2020. I ended up blistering all over my face but I took good care of my skin and quickly recovered. I’m 17 years old, I’m skinny, I’m not on any medications, Ive never really had a serious medical condition, and I’m really lost. I just want an answer but Im not very hopeful after being let down so many times prior to now. If anyone has any information I might be able to find helpful I would really appreciate it. Thank you

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Replies to "I recently found a post while doing research that resembles exactly what I’ve gone through this..."

I’m so sorry you are experiencing this as a 17 year old! I’m having the same symptoms. I’m in the midst of working with a Rheumatologist to find answers and so far nothing. I went the same route, allergy testing etc and no cause found there. I’ve been to an eye doctor to see if it’s eye infections, no. Dermatologist as I do have Rosacea but no answers there either. Keep me posted if you find anything new and I’ll do the same.

My face swelled and it was trigeminal neuralgia.