← Return to Stage 3 chronic kidney disease (CKD): What specialists do I see?

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@jackie79

I'm happy to have found Mayo Clinic Connect. I am stage 3 CKD and see my Nephrologist twice per year who travels to our small town from a larger facility out of state. I have asked many questions regarding my diet and he tells me I can eat anything and only to restrict protein and drink 60 ounces of water daily. I asked how much protein and was told 70 grams per day which seems a lot to me. I have always limited animal protein to 3 ounces per serving before I was diagnosed. I do my research and it looks like 3oz chicken breast for instance has 23g protein. Based on this, although he has said I can eat anything, I have researched and done my best to limit certain foods high in phosphorous and potassium. I have many questions but when I ask, his answers are abrupt and tend to shut me up. I am 79 and walk a mile every day on the track at our health center gym. Nephrologist says lose weight, exercise and check blood pressure, nothing more. I have a fixation plate attaching my left arm to my shoulder after a bad fall in 2016 with 2 surgeries for a 4 part fracture with 3 broken ribs and I am short on one side now and am limited with upper body workouts and balance but again he becomes irritated with explanations. I don't know what I'm doing right or wrong and this is the only game in town so to speak. I have lost weight, but unsure if I'm getting enough of the foods the rest of by body needs and enough calories. Very worried.

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Replies to "I'm happy to have found Mayo Clinic Connect. I am stage 3 CKD and see my..."

@jackie79 Welcome to Mayo Clinic Connect! I'm glad you found us, and hope we share our experiences here with you! As you have seen, there are some doctors who still think Stage 3 is not a big deal, that no proactive measures need to be taken. When I was there [now I am Stage 5], I started following a renal diet, limiting potassium and phosphorous, monitoring my blood pressure, weight, and stress closely. Doctors told me "no big deal, you don't have to do that" but I thought otherwise.

Here are a few links to good sources for kidney diets and guidelines:
From the National Kidney Foundation https://www.kidney.org/nutrition
From the American Kidney Fund: https://www.kidneyfund.org/kidney-disease/chronic-kidney-disease-ckd/kidney-friendly-diet-for-ckd.html
From Renal Support Network: https://www.rsnhope.org/renal-recipes-kidney-friendly/

I take a multi vitamin each day, and strive for a healthy diet. Okay, sometimes I fudge a bit! I admit it! But for the biggest part, I am careful. As for your nephrologist and his patient approach, you might ask him for resources, let him know he is part of your team. He might be abrupt due to overwork, or the 2x yearly visit? Your questions might be something he isn't wanting to go in to because he hasn't considered them at this stage of your case. I bet i am not the only one who would agree with you they have seen it also in their doctors!

While we wait for others to check in, do you have any other questions?
Ginger