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Have Bronchiectasis, recently diagnosed with pseudomonas
MAC & Bronchiectasis | Last Active: Oct 17, 2023 | Replies (208)Comment receiving replies
In regards to pseudemonas: I cannot take the Levquin due to using it over many years and now I have neurapathy in my feet and toes. I am trying to hear back from as many of you as are able to give me some ideas as to the issues they had, if any, in using the inhaled Tobramycin. One of you said at one point in her treatment, she suddenly could not breathe. That is the scariest thing to me and for that reason, I am very scared to use the Tobramycin. Has anyone else had that reaction? Can you tell me how many days you had to take it for the pseudemonas to clear up? Would the 7% saline help to get rid of it, and has anyone used that with any success? I am now coughing up a good deal and I am going to have to bite the bullet and take something. I see my lung doctor tomorrow. Any information would be greatly appreciated. Pamela
Replies to "In regards to pseudemonas: I cannot take the Levquin due to using it over many years..."
I had severe shortness of breath with both Albuterol and Levalbuterol (chest tightness) so am not taking a bronchodilator at this time. I am also very "timid" about new meds due to that experience.
Hi, Pamela-
Just curious to know how your experience with the Tobramycin went. I started my 28 course 2 days ago along with another 14 day course of Cipro that I started a few days before I worked up the nerve to start the Tobramycin. I am so nervous about any kind of inhaled meds as my fist exacerbation was after adding two inhaled meds.
After two days on the Cipro I noticed a definite improvement in my symptoms but now that I have started the Tobramycin I have noticed that I am having increased shortness of breath and my chest feels very irritated. I am hoping things will get better and not worse.
I am hoping you had some success. I have been faithfully nebulizing Levalbuterol and 7% saline twice a day since April and have not been able to keep my symptoms at bay with that alone. I am thinking of having my right middle lobe removed in the spring as it is classified as end-stage bronchiectasis and my doctor at NJH thinks that if I have it removed I will be less likely to have a harborage for all this bacteria that is wreaking havoc in my body.
I am sending prayers and good vibes your way.
-Echo
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I have a bad case of pseudomonas. Please share what your doctor said and prescribed for you. I am waiting for a call back from the nurse to set up an appointment with my bacteria specialist. Thanks.