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Dealing with Post COVID and Complex Regional Pain Syndrome
Post-COVID Recovery & COVID-19 | Last Active: Mar 19 10:31pm | Replies (19)Comment receiving replies
Hi @drwhat welcome to Mayo Clinic Connect. I see you’ve been dealing with CRPS since 2003 and now your pain and symptoms have worsened due to COVID infection and long haul COVID. You may wish to connect with fellow CRPS members in this active discussion in the Chronic Pain group:
- CRPS - anyone suffering with complex regional pain syndrome https://connect.mayoclinic.org/discussion/crps-anyone-suffering-with-chronic-repetative-pain-syndrome/
There are more and more clinics and doctors specializing in post-COVID recovery across the country and around the world. Have you consulted with specialist at a Post-COVID Recovery Clinic? What other long haul COVID symptoms along with CRPS flare are you experiencing?
Replies to "Hi @drwhat welcome to Mayo Clinic Connect. I see you’ve been dealing with CRPS since 2003..."
hi Ms Young,
I was a nurse working at Seattle Children's hospital when I got covid march 2, 2020. I have multiple chronic conditions now... rheumatoid arthritis, mild pulm fibrosis, POTS, and most disabling pain. I finally saw a pain specialist who diagnosed me with CRPS. I cannot use my right hand/fingers most of the time. The pain is burning, needles, sometimes squeezing. Just awful. Additionally, I have had chest pain since 2020... always on the right side. I have been trying to get a stellate ganglion block authorized and found this discussion group. Thank you for posting this... nerve pain is so debilitating, and I feel some sense of support that CRPS has been diagnosed in many with Long Covid. And it seems that Stellate Ganglion Block has helped some people w post viral pain. Let's hope that research and clinical trials for therapeutics continue.
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Thank you for your reply