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Hi Kayeellen. I only found this Mayo Clinic Neuropathy Support site a few minutes ago. I live alone and have few visitors. I was wanting to chat with others who may suffer with various forms of neuropathy like myself. I was caught by you “getting so very depressed” because I too deal with depression. Some days worse than others. I generally do my best to ignore it but find myself drinking more and just pining away hoping something good will happen.
Replies to "Hi Kayeellen. I only found this Mayo Clinic Neuropathy Support site a few minutes ago. I..."
Hi - I just found this site yesterday and was wanting to see and know how others are handling this AWFUL neuropathy situation. Seems like there is not much help out there. Yes, I do get depressed, but I have a caring and concerned husband who tries to help me in anyway possible. I read (especially uplifting articles ) as I am an avid reader, and that helps to settle my emotions down quite a lot. I also have a family who helps to get me through this. My leg weakness is so terrifying to me as I can almost see a wheel chair in my near future.
I have had neuropathy for over 25 years . I am a alcoholic but have not had a drink in 9 years. The point I am trying to convey is my Dr. begged me for years not to drink as it is one of the major items that cause neuropathy. As soon as I did the pain subsided a lot. Thanks and good luck!
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Hello @tmarvin, Welcome to Connect. I'm sorry to hear you haven't found any help or support for your neuropathy. I know it can be depressing at times when there seems to be no hope and living alone can make things harder for you. I wonder if it might help to read through some of the members stories about their neuropathy. I think you might find the following discussion helpful since a lot of us with neuropathy have struggled trying to find something that provides relief for the pain, numbness and other symptoms.
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
I think what really helped me when I first joined Connect was learning from other members experience and doing my own research to learn more about neuropathy and what options are available that might provide some relief. You might find the following sites helpful for learning more about neuropathy.
-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
Can you share a little more about your neuropathy diagnosis and how long you have had neuropathy?