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@santosha

@louisez79
Hi Louise, Good Evening
I am really sorry to hear about your fall and then surgery at your age. What kind of surgery did you go through? Was it like an epilepsy surgery (i.e. laser ablation) to remove a lesion in the brain? What I have heard is that even after such a surgery, patients need to continue to take antiepileptic meds. If I understood you well, you were on Vimpat just for one month, July 2021, right? Just a curiosity, how did you feel with Vimpat?
I have searched here now on the internet and the initial dose of Keppra seems to be 500 mg twice per day. I understand you very well when you say that you did not want to continue living your life with those side-effects. I have been through it for almost 2 years after being diagnosed with epilepsy in February 2019 (I am 50 years old). I am much better now with my CBD treatment. I feel like my life is back :-)!
CBD is usually prescribed to patients, when two or more AEDs have not worked. I have taken 5 different AEDs before starting with CBD. I have not yet read that CBD is prescribed after epilepsy surgery. But I am not a doctor! Talk to your neurologist.
Asking your doctor about you taking CBD will for sure not hurt. One thing I have learned throughout my treatment and also in epilepsy communities is that not every doctor is familiar with CBD treatment. Some two months ago, we had a long and nice discussion on CBD in our group at Mayo Clinic Connect, sharing many experiences about CBD. Have a look at it!
I hope I have helped you a bit!
All the best to you!!! I hope you continue to feel better every day and with no seizures. Take good care of you!
If you have any other questions or want to talk, feel free to contact me!
Kind Regards,
Santosha

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Replies to "@louisez79 Hi Louise, Good Evening I am really sorry to hear about your fall and then..."

good evening santoshia - boy, you have had a worse and longer time of it. i truly hope that the cbd will do the trick for you to be and stay better. i was walking my son's little dog and my bad knee gave out on me (which i can usually catch it), but the dog was on a leash and kept walking, so down i went. that is the reason i said to dr's it was not a seizure, as i got no aura, and i remembered everything. had to have many surgeries - neuro surgeon (whom i love), put 2 stents in my head in hopes to get my brain back to midline and absorb the blood. last cat scan he gave me before he discharged me, all was great, brain was back to midline, and all the blood was gone. he told me to see the neuro dr., which i had an appt to do so, and ask her to consider maybe wean me off meds, she wanted me on meds for six months, but i insisted on being off because i was no on meds for 4 months. along with the head injury, i managed to fracture one hip which needed surgery also. in the hospital from july to late sept. for both injuries, now i am slowly healing and getting around pretty good. i know it will take a long time for me to feel as myself before these injuries, but i am working towards being 100% by next spring to again get on the golf course (miss it). as you can see, i am a very active elderly lady, and that is the main reason i want my life back.

i hope the cbd will continue to work for you and get you back to living life as you once did. i pray that i will not get any setbacks also, and just continue to get better.

as for the vimpat, it seemed okay for awhile, but then i was getting side effects from it, and plus it was too expensive for me to stay on it. keppra reacted the same, when i first went on that it seemed okay, but then again i started having too many side effects from it. (i am not a good patient when it comes to taking meds - always get reactions).

santoshia, you have helped me alot, just by talking about this. i hope i have done the same for you. stay in touch if you want to.

louise