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DiscussionBronchiectasis what are the stages and symptoms
MAC & Bronchiectasis | Last Active: Dec 1, 2023 | Replies (106)Comment receiving replies
Replies to "That's a lot of questions! Let's start at the beginning with a welcome to Mayo Connect..."
I am sorry but unsure how to start a new post. I just received a Volara nebulizing machine with instruction from the respiratory therapist. I used it for the first time this morning. There is still saline in the nebulizing port. Does anyone have this Volara and does it not use up all the saline during a treatment? My machine is also set on "medium" for now. The therapist said to start there and work up to the "high" setting. Maybe more solution will be gone on that setting? And do most use the high setting? I do feel it works better than my nebulizer I had that was 3 years old. Thanks for any help/suggestion.
I have bronchiectasis and MAI, also have had pseudomonas in lungs about 9 months ago. Treated 3 weeks with Cypro. Diagnosed 2 years ago but problem started with severe and lengthy bronchial infection.
Other problems: Heart block with pace maker and beta blocker, (Bisoprolol Fumate to control atril fib.
GERD following a bleeding ulcer 3 years ago.
Chronic sinusitis with post nasal drip
Have had reactions to nasal sprays and inhalers due to interaction with beta blocker for heart. Caused Shortness of breath and one severe reaction with rash over entire body and an ER visit.
Bronchodilators (Albuterol and Levalbuterol help with mucus clearing but severe tachycardia and SOB, so stopped brochodilator 1 week ago.
Now only Neb 7% saleine followed by Budesonide and using Smart Vest and Aeroika at intervals during the 7% saline inhalation.
I am on oxygen at 2 L/M for sleep Oxygen was dropping to dangerously low during the night.
Would like suggestions on:
1. Ways to decrease the airway clearance time
2. Meds for chronic sinusitis ( I have tried Azelastine;
Fluticasone Propionate; Mometasone. Each worked for sinusitis but could not use because of causing sever SOB .
3 Bronchodilatro that may work with cardiac Beta blocker, Bisoprolol Fumarate.
That's a lot of time and meds. About 3 yrs ago I lost 45 pound, was coughing up blood, etc. I was sent to get a lung scope and they found a bad infection that was resisting the antibiotic my MD had prescribed. The Pulmonologist settled on ciproflaxen and the infection cleared for about 3 weeks, but then returned. He then tried again and added another antibiotic by nebulizer and it was effective for another 3 week. The third try I thought I don't want to be doing this for the rest of my life, so I did a lot of research on the internet and found a site that researched using silver along with antibiotics and found they were much more effective. So, the last 3 day of the antibiotic I added 4 ml of colloidal silver to my nebulizer routine. and followe up one day every week with just the silver. 6 months later still no reinfections. I checked with the Pulmonologist and he said he hadn't herd of that, but as long as it worked keep it up.
It's now 3 1/2 yrs. later and I take 4 ml of Mesosilver 2 times a week by nebulizer and have had no more need for antibiotics. I also take 1 1/2 loratadine for my sinus drainage every day. Check with your doctor .There are many brands of colloidal silver, but I have tried at least 3 that didn't work for me.
– Colloidal silver: is it safe? https://www.mayoclinic.org/healthy-lifestyle/consumer-health/expert-answers/colloidal-silver/faq-20058061
According to Dr. Brent Bauer from Mayo Clinic says "Colloidal silver isn't considered safe or effective for any of the health claims manufacturers make. Silver has no known purpose in the body. Nor is it an essential mineral, as some sellers of silver products claim."
Read more from NIH's National Center for Complementary and Integrative Medicine
– Colloidal Silver https://nccih.nih.gov/health/silver
Hi Sue,
I read where you said you had to get off beta blockers. I've been on them for 8 years for a benign occasional arrhythmia.
Did you have to wean off of them Sue, to avoid a rebound effect? I am going through this right now. I want "off "to see if they are causing my burning mouth problem. I read online that beta blockers can do that.
My dr mistakingly cold turkeyed me off and I ended up in the hospital for two days. It was a nightmare...... I've been to all kinds of drs to get to the cause, and have had many tests. Tks Bon
What kind of compressor do you use? I use a Pari VIOS green and it takes about an hour to nebulize, twice a day. I read, watch TV, play scrabble online, etc but sometimes feel like the time it takes takes over my life.