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@louisez79

santosha, perhaps i can ask my neuro "would it be helpful to take CBD also" to help prevent possible seizures now that i am off meds for seizures - what do you think?

louise

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Replies to "santosha, perhaps i can ask my neuro "would it be helpful to take CBD also" to..."

@louisez79
Hi Louise, Good Evening
I am really sorry to hear about your fall and then surgery at your age. What kind of surgery did you go through? Was it like an epilepsy surgery (i.e. laser ablation) to remove a lesion in the brain? What I have heard is that even after such a surgery, patients need to continue to take antiepileptic meds. If I understood you well, you were on Vimpat just for one month, July 2021, right? Just a curiosity, how did you feel with Vimpat?
I have searched here now on the internet and the initial dose of Keppra seems to be 500 mg twice per day. I understand you very well when you say that you did not want to continue living your life with those side-effects. I have been through it for almost 2 years after being diagnosed with epilepsy in February 2019 (I am 50 years old). I am much better now with my CBD treatment. I feel like my life is back :-)!
CBD is usually prescribed to patients, when two or more AEDs have not worked. I have taken 5 different AEDs before starting with CBD. I have not yet read that CBD is prescribed after epilepsy surgery. But I am not a doctor! Talk to your neurologist.
Asking your doctor about you taking CBD will for sure not hurt. One thing I have learned throughout my treatment and also in epilepsy communities is that not every doctor is familiar with CBD treatment. Some two months ago, we had a long and nice discussion on CBD in our group at Mayo Clinic Connect, sharing many experiences about CBD. Have a look at it!
I hope I have helped you a bit!
All the best to you!!! I hope you continue to feel better every day and with no seizures. Take good care of you!
If you have any other questions or want to talk, feel free to contact me!
Kind Regards,
Santosha