← Return to Can anyone suggest any other medication besides Keppra for seizures?

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@santosha

Hi @louisez79
I have not tried Keppra, but as far as I know, those medications (AEDS – antiepileptic drugs) should not be withdrawn from one day to another, unless the dose is small or the med has been replaced by another AED. I have refractory epilepsy and the last AED I took (Vimpat – Lacomsamide) has been withdrawn slowly in a period of 6 months as it has not been replaced by another AED, but by CBD (cannabis). My doctor has been very careful in this transition so as reduce/eliminate potential side effects of this change. I am also a person very sensitive to antiepileptic drugs.
Has your doctor replaced Keppra by another med @louisez79? Did you take a high dose of Keppra?
Take care!
Santosha

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Replies to "Hi @louisez79 I have not tried Keppra, but as far as I know, those medications (AEDS..."

hi santosha thank you for the information. i was on vimpat back in july when i had my surgery due to a fall and brain bleed. when i had to refill it the cost was too expensive for me and my neuro then switched me to keppra (august). i was on 750mg twice a day, which caused many side effects. my neuro then told me to take half pill twice a day (since early september). i had requested the neuro to take me off keppra now, mid october - (causing too many side effects and i was now on seizure meds since july thru october while reducing the meds all along, as a preventive of seizures (no test done for seizures while in hospital ever showed me having a seizure which could have caused me falling and having a brain bleed). i understood neuro taking preventive measures, but this med was causing me to feel awful every single day from july to october and i just did not want to live my life with these side effects without trying to wean off them.

neuro finally told me, reluctantly, that she disagreed but would wean me off. i was told last week to take 1/2 tablet of keppra once a day, for three days, then stop the med, which i have done. this is my third day of not taking this med now, and thank the lord i am not having most of the side effects that i was having while on this med, hope it continues - but i will stay conscious of any changes that may arise and immediately notify my neuro (hoping for no changes and i just keep getting better each day).

i hope that you will stay healthy and get better each day also. let me know your thoughts that my neuro did wean me off keppra sufficiently, as i would love to hear back from you.

louise

santosha, perhaps i can ask my neuro "would it be helpful to take CBD also" to help prevent possible seizures now that i am off meds for seizures - what do you think?

louise