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Do you experience low blood pressure when you stand? Nov 24, 2023 | By Marie Suszynski, Writer (@mariemayohecs)
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@babsstruck

I have Orthostatic Hypotension and Orthostatic Tychacardia since an auto accident in 1999. Also got fibromyalgia at same time. I follow all your recommendations for OH and still have problems. The last time my specialist checked my BP when I stand up, it fell 60 points. He retired and I have no one to check it. I asked my neurologist to follow my Dysautonomia, but he doesn’t check it. He changed my BP medicine to lower it. I never had high until 2 years ago and it was staying at 200/100. Also had an eye stroke at that time. My primary put me on BP Med to lower BP. This Summer I had stomach problems and my BP was staying at 100 or less/50 so neurologist lowered BP meds. I am not sure what to do about near syncope spells. Can’t seem to stand up 5 minutes before feeling faint. Any answer for me?

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Replies to "I have Orthostatic Hypotension and Orthostatic Tychacardia since an auto accident in 1999. Also got fibromyalgia..."
Teresa, Volunteer Mentor | @hopeful33250 | Oct 17, 2021

Hello @babsstruck

I am sorry to hear about your BP problems and the fainting sensations. It does sound like it would be helpful to you to get a second opinion.

I understand that you currently see a neurologist. Since you have had an eye stroke, I'm wondering if you could see a vascular specialist or perhaps a nephrologist who specializes in BP problems?

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artist01 | @artist01 | Oct 24, 2021

@colleenyoung,
@babsstruck and all.
I suffer from syncope as well, and black out about every 5 or 6 weeks, complete with ambulance, E.R., etc. Highly disconcerting, to say the least. I don't know if my story might help you, @babsstruck.
Of the several diagnoses I've had over the years, most doctors have now settled on Vasovagul Nerve Syncope, likely as a result of my IBS. There doesn't seem to be an answer for it, as far as my blackouts are concerned, other than trying to control my very stubborn IBS with rigid diet restrictions. If I vary anything in my
diet, I'm in trouble. My meals are small and boring, because I have to stick to the same foods day after day. My medical team has advised me to have 2 or 3 bottles of Ensure meal replacement daily to make up for nutritional losses.
I take my own blood pressure and also get it checked every two weeks (sit/stand variety) by a registered nurse, who faxes her reports to my family doctor. I mentioned in another post today that my BP drops 30 to 50 points in the "stand" position. If my BP remains a problem, my doctor refers me to my Internal Medicine Specialist to regulate it with a different medication or a different dosage of the one I'm on. I really don't advise anybody regulating their BP medications on their own.
@babsstruck, maybe IBS is not your particular problem, or is it? It could be any number of things. It would be good if you could get a referral to a specialist.
Good luck to you as you look for a solution.
Warmly, Laurie

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