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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 4 hours ago | Replies (6019)

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@pfbacon

I learn so many interesting things here about the condition that I have (axonal sensory neuropathy) and possible side effects of the condition and the available medications. Thank you, all of you, for sharing about your experiences.

I am so grateful for gabapentin and lyrica ... they enable me to live fairly close to normal. I have pain every day but most of the time, it's low grade and I can ignore it. Being with people and running on the beach are two activities that help me ignore it.

One night, I made a mistake in reading my doctor's instructions regarding a new medicine that was added and I didn't take the gabapentin. Omigosh, I awoke at 5 in the morning with incredible pain - like I was standing in a bonfire with flaming swords being thrust up through my feet into my body and swarms of wasps stinging the parts of me that weren't on fire. Hell could not be worse. I called my doctor and laid in bed suffering for 3 hours til his office opened. As soon as he got in, the service gave him my 'urgent' message, he called and told me to take the gabapentin. In about 1/2 an hour, I was better; exhausted, but the bonfire/swords/wasps subsided. I learned to double check doctor's instructions and I found out what untreated neuropathy feels like. My condition is progressive, so it will be even worse if I ever forget to take my medicine or run out of it. Peggy

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Replies to "I learn so many interesting things here about the condition that I have (axonal sensory neuropathy)..."

I am currently taking 1100mg of Gabapentin adding 100mg per week toward md recommended dose of 2600mg daily. How much are you taking and what was titration schedule? Happy for your results!