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Penile melanoma --Melanoma is NOT just skin cancer!

Cancer | Last Active: Dec 23, 2021 | Replies (86)

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@texastribble

Well piffle!!!!!!! I wrote the whole long story of the past few days----I heard the soup boiling on the stove and went to check it, and all by rambling disappeared! Oh, well, y'all are saved because I am not doing it all again---you will get a shortened version.
At the doc office Tuesday, Jerry felt really horrible---and they finally realized what eI had been saying about his low O2---It was 74! That got their attention and they got busy and got it ordered. It was delivered yesterday afternoon late. Home health was also ordered---the nurse was out this morning for the evaluation. Will try some physical therapy and see if he can handle it. The nurse was to come once a week, but we talked a little bit outside as she was leaving---she called back and said she thinks they need to check on him twice a week---I agreed. I explained the doc's attitude about how great and wonderful the treatment is and that he will be up and running races in no time. She agreed that it is not going to happen. She agrees with me that he is much worse than the doc is saying---which I have said all along.

I have the oxygen on 3 L to get him about 92% oxygen. Still low at that. I can increase if needed.

Jerry could hardly stay awake and comprehend what the nurse was saying/asking. As soon as she left he was sound asleep, and has been since then---about 2 hours. He woke up about 6 AM and has been awake no more than 2 1/2 hours since he got out of bed---(1:30 PM now) Hopefully, he is just extra tired due to the infusion yesterday, but I feel that he is going down hill rather quickly. He is not talking about it, so I don't know what he is thinking. However, he told the nurse that his goal was to make it to his birthday 11/01---and if he does that, he will try for Thanksgiving.

More another day. Thanks for the good thoughts and prayers.

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Replies to "Well piffle!!!!!!! I wrote the whole long story of the past few days----I heard the soup..."

@texastribble Having small goals like that is a good thing to focus on. My dad did the same and it helped him. Very glad to hear you got the oxygen needed, and you will get support from the home health nurse! She will back you up on any issues you take to the doctor.

Are you getting any rest?
Ginger