← Return to Amyloidosis. Diagnosis, treatment, frustration. AL, hATTR, etc.

Discussion
Comment receiving replies
@johnbishop

@oldkarl and other members with Amyloidosis, hATTR, and polyneuropathy. I thought you might be interested in the following free webinar from the Foundation of Peripheral Neuropathy.

Understanding the Connection Between Polyneuropathy and Hereditary ATTR (hATTR) Amyloidosis
Tue, Oct 26, 2021 1:30 PM - 2:30 PM CDT
--------------------------------------------------
Understanding the Connection Between Polyneuropathy and hATTR Amyloidosis

Hereditary ATTR (hATTR) amyloidosis is a rare, genetic condition that affects an estimated 50,000 people worldwide. hATTR amyloidosis is caused by a gene change, or variant, that affects the function of a protein called transthyretin (TTR). In hATTR amyloidosis, the TTR gene change causes the protein to take on an abnormal shape and misfold. This change in shape causes the protein to build up in various parts of the body, including the nerves, heart, and digestive system.

As a hereditary disease, hATTR amyloidosis is passed down through family members. If one parent has hATTR amyloidosis, each child will have a 50% chance of inheriting the variant from that parent. However, inheriting the variant does not necessarily mean that they will develop hATTR amyloidosis.
--------------------------------------------------
Register for the webinar here: https://register.gotowebinar.com/register/3171035932823239695

Jump to this post


Replies to "@oldkarl and other members with Amyloidosis, hATTR, and polyneuropathy. I thought you might be interested in..."

If you missed the first one, the Foundation for Peripheral Neuropathy is having another webinar on the same topic.

Understanding the Connection Between Polyneuropathy and Hereditary ATTR (hATTR) Amyloidosis

Thursday, September 28
1 - 2:15 p.m. Eastern Time, 12 - 1:15 p.m. Central Time, 11 a.m. - 12:15 p.m. Mountain Time,
10 - 11:15 a.m. Pacific Time

Register for the webinar here: https://register.gotowebinar.com/register/4187465179330676828