Connect
← Return to Spinal Cord Injury
Discussion
Comment receiving replies
@jenniferhunter Hi Jennifer,
Thank you so much for the valuable information you shared. I appreciate your thoughtfulness. My son had a laminectomy and a corpectomy at L1 in august of last year at Mayo Clinic in Minnesota. His surgeon was Dr. Bydon, one of the doctors with the stem cell study. Unfortunately my son is not qualified. They are looking for patients within the first year of injury.
My son does not qualify for the spinal stimulation studies either. I am very saddened with the fact that I can’t find any help for him. I am planning to reach out to the sponsor of the spinal stimulation trial study to find out if they are planning to expand their study group hopefully in the near future to include L1 injuries.
Once again thank you so much for your time and the literature you shared. This group is amazing. I wish I found you guys a little earlier.
Replies to "@jenniferhunter Hi Jennifer, Thank you so much for the valuable information you shared. I appreciate your..."
Connect
@suzanbaltaji Thank you. I am glad your son had a great surgeon in Dr. Bydon. It doesn't hurt to write letters and ask about future studies and you may even be able to influence something like that if you figure out who to write to. It is possible that your son could benefit in the next few years if a trial produces good results and becomes a standard practice for treatment. You can also search for studies at the clinical trials website. https://www.clinicaltrials.gov/ Maybe you will find a similar study at another well respected institution, and that website could be updated any time. I looked at the Clinical Trials website for information about artificial disc trials to learn about them before my fusion surgery. I would not have been a candidate either, but I learned things that were risks that could cause device failure like the amount in mm of instability in the spine. 4 mm disqualified a person for an artificial disc study and I had 2 mm of instability, so I was not a great candidate for it anyway. If your son is interested in a service dog, there is often a waiting list of a few years. Canine Companions provides trained dogs for free to qualified candidates, but I don't know the specifics except a person needs to be able to handle a leash with their hands. I'm glad you find value in Connect. I've been on here for 3 years and I find meaning in helping people here.