← Return to COPD end stage: Anyone else?

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@tuffstuff222

Hi everyone, i haven't been writing lately sometimes just get down. I sleep a lot, don't sleep well at night. End up in the recliner. If any of you can get a lung transplant I am happy for you. My doctor told me i have too may issues that they would not even consider it. My congestive heart failure fights against my COPD. I am like some of you my family has no clue how bad this can get. I live alone like many of you and sometimes at night i wonder if i will see morning come. My daughter realizes how bad this is, she went with me to the doctor and she was shocked. My pulmonary doctor told me to get my things in order. My daughter thought I was being morbid about this. I let her read the email that i asked my doctor not to sugar coat but to be upfront with me with answers and he did give them to me. I wanted to know what was coming i did not want to be taken by surprise. But each of your cases are different. Remember to talk to your doctor and they will be honest with you. Some of you have lesser cases which is good and your time can be extended. Just follow what your doctors say. I have a heart doctor and a pulmonary doctor. I am not losing weight but I am gaining weight. I keep retaining fluids in my feet and legs and fluid in my lungs. I am not wanting to go to the ER anymore. I have been there 4 times this year and do not really want to go back, I hear all of you and I am glad i can talk freely with you guys. It is a blessing to know all of you. TuffStuff

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Replies to "Hi everyone, i haven't been writing lately sometimes just get down. I sleep a lot, don't..."

You certainly are tough stuff, TuffStuff. I’m similar to you in that I like to know things without sugarcoating. For me knowledge helps me prepare and be realistic in my planning and how I frame hope. This doesn’t mean without hope, just where I put my efforts. My dad differs from me and wants to only know that absolute necessary. He knew the reality of his condition, but preferred not to talk about it or be reminded of it, which is what information meant he would have to do.

Now that your daughter understand more about COPD and the progression of disease, have you been able to have heart-to-heart talks?