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Replies to "Doing the best I can! There has been so much to process, and because what I..."
Autoimmune Diseases | Last Active: May 29, 2022 | Replies (23)
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Doing the best I can! There has been so much to process, and because what I have is so rare, I find it hard to figure out what to do next. Most of my options are very freighting to me, a lot of powerful drugs with lots of side effects. I know that I have a great care team, so I have to listen to them, and Pray for the wisdom to make the best decisions. Trying to take it one day at a time!
Replies to "Doing the best I can! There has been so much to process, and because what I..."
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@kathrynmc Oh, i do know what you mean! Before i was diagnosed, i was admitted to the hospital in a non-responsive state. My sisters came and my sons were called to come quickly. With the help of infusions of steroids, i finally came to. My AD was on my brain and so frightening! Thank heavens for the drugs and procedures that are keeping me here today. But, it is scary!!!
Keeping good records is very helpful. My husband kept notebooks of everything starting from day 1. Date everything! Do you have someone who goes with you?