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Has anyone with UC stopped responding to Entyvio?

Digestive Health | Last Active: Jul 7 12:41pm | Replies (60)

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@ciaran

Dval. You said you eat plant created food. Do you eat a lot of salad? I do not eat lots of meat either. Occasionally ground beef or plant based ground meat substitute. But salads and lots of plant based foods do cause loose stool. I do eat fish though. Sometimes the natural oils in certain fish cause terrible problems. I guess we kind of take it day by day.
I did say that I do not eat healthy foods. I find that if you are plagued with UC, you cannot follow a truly healthy diet. Stay away from juices also. Fruit, veggies, juices, absolutely no dairy, and by the way, almond milk, rice milk, etc if taken more than 2 ounces, will also cause problems. It's not just the ingredients.. it's the consistency. I have been managing this since age 18. My mom had it, my brother had most of his colon removed, and one niece has Chrohns. I eat lots of bread, plain rice, potatoes, etc. Like I said, not so healthy, but it allows me some days where I can actually go out of the house.

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Replies to "Dval. You said you eat plant created food. Do you eat a lot of salad? I..."

Yes, that is the goal - to be able to leave the house... I do eat salad, but mostly cooked fresh vegetables, beans, potatoes, pasta. I have some great recipes for vegetarian/vegan soups, chili and snack balls (peanut butter, oats and dates). I try to eat several small meals all day. It has been a challenge maintaining my weight. I have been under 100 pounds while flaring and can't seem to get to 105 on a good day. I do yoga and walk 3-5 miles a day because moving eases the pain. Sometimes being curled up in a ball hurts more than moving around. There have been days I have been too weak to walk through my house (like last week when I had bloody diarrhea 17 times in one day). This disease is relentless and the unpredictability is the worst! I don't know day to day what I will be able to do, and that's the most difficult.