I had my General Practitioner, Pulmonologist, Rheumatologist send referrals. That was in June. We call weekly. They say they haven’t received anything every time. I can’t breathe on left side, hoarse voice, MRIs came back normal, blood test show double dna with Ana titers..which usually means lupus but they are saying it is not lupus. I have herpes, hpv1 since I was young so that could be the double dna. Can’t take a deep breath..diaphragm test came back as functions great. Neurologist says the NCS and EmG normal..great he said. I have super sore joints in my hands on waking. Random pins and needles in feet and legs throughout day. The left side is so uncomfortable all the time and I have no energy. Since Mayo hasn’t responded my Pulmonologist has ordered a bronchoscopy and that is a very invasive procedure. Scared. They don’t know what else to do for me. I’m 51 and am healthy, was. I get a cold every five years…maybe. Sorry this was so long. I am putting you on prayer list that you get seen. Hang I there and keep calling no matter what.

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