I had my General Practitioner, Pulmonologist, Rheumatologist send referrals. That was in June. We call weekly. They say they haven’t received anything every time. I can’t breathe on left side, hoarse voice, MRIs came back normal, blood test show double dna with Ana titers..which usually means lupus but they are saying it is not lupus. I have herpes, hpv1 since I was young so that could be the double dna. Can’t take a deep breath..diaphragm test came back as functions great. Neurologist says the NCS and EmG normal..great he said. I have super sore joints in my hands on waking. Random pins and needles in feet and legs throughout day. The left side is so uncomfortable all the time and I have no energy. Since Mayo hasn’t responded my Pulmonologist has ordered a bronchoscopy and that is a very invasive procedure. Scared. They don’t know what else to do for me. I’m 51 and am healthy, was. I get a cold every five years…maybe. Sorry this was so long. I am putting you on prayer list that you get seen. Hang I there and keep calling no matter what.

@wa34937 @cindajune Mayo Clinic has a care network where other hospitals work in conjunction with Mayo specialists to care for patients nationwide in the US. Here is a map with locations of hosipitals in the Mayo Clinic Care Network. Perhaps you can find a cardiologist at one of these locations who would have the benefit of consulting directly with Mayo specialists. There are also a lot of Mayo trained specialists at hospitals across the nation.

With cardiology, it really is best to have a cardiologist near where you live because if you have a cardiac event, you would want your cardiologist who knows your history to be able to see you. If you do live local to one of the Mayo campuses, you could try again.

My dad was a cardiac patient and I was with him through a lot of it and I was working with my dad's doctors as his caregiver and advocate. I even sent my dad to the emergency room several times when my parents didn't recognize the cardiac event that had occurred. One of those was an electrical problem in the heart where my dad collapsed on the floor, but then recovered and was OK again. His pacemaker defibrillator had fired and saved his life after an arthymia. Those devices are closely monitored by a receiver that sends information to the doctor around the clock. This illustrates why a local specialist is needed for the cardiac monitoring.