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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 2 hours ago | Replies (6019)

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@julkun

You are saying Neuropathy is driving body temperature. I am saying body temperature is driving neuropathy, that is, the pain signals to the brain. Your story is interesting. Thanks

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Replies to "You are saying Neuropathy is driving body temperature. I am saying body temperature is driving neuropathy,..."

I wake up and put ice on feet! Only thing found to work!

My apologies… I’m saying neither… I meant to say that often people that have CIDP, my specific diagnosis, find it their body temperature fluctuates widely (to Say in a better way), meaning that they might be in a cold room with air-conditioning and yet they still feel very hot. Or perhaps the opposite is true. Or perhaps they sleep at the same temperature every night with the same covering, yet some nights they feel very hot and other nights they feel too cold. It’s a symptom of the disease. I experience it, others do not. Not just talking about my feet. And CIDP is a rare disease, any other type of neuropathy work independently I believe. There are several types. Good Luck 🍀