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High or Fluctuating Chromogranin A Level: What does it mean?

Neuroendocrine Tumors (NETs) | Last Active: Jun 18 3:39pm | Replies (184)
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@tracyfurtiscaudle

Yes. I am seeing a homeopathic doctor still. Detoxification of my GI Organs; as well as helping me reduce my PPI intake. (Proton pump inhibitors/nexium). I am scheduled for another Chromogranin A blood test in a couple of weeks; I should have in September but needed some downtime from the medical scene.
I have not been back to the oncologist; depends on upcoming bloodwork. My PET scan was w/in normal limits, but my GI doc says I will be further monitored.
I am truly saddened to hear about your medical diagnosis.
Please let me know if I can be of any further help.

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Replies to "Yes. I am seeing a homeopathic doctor still. Detoxification of my GI Organs; as well as..."
Teresa, Volunteer Mentor | @hopeful33250 | Oct 8, 2021

I'm glad to hear that you are feeling better @tracyfurtiscaudle. I hope that your blood work shows an improvement in the Chromogranin A levels.

I would enjoy hearing from you. Will you post an update?

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tracyfurtiscaudle | @tracyfurtiscaudle | Oct 8, 2021

My symptoms have lessened with a restricted diet-low histamine diet & gluten-free. Also, I continue to use the DAO (diamone oxidase supplement) since my body lacks this enzyme. I am scheduled for another Chromogranin A test; recently had an SIBO test( results pending). I am feeling better with GI supplements I take daily per my homeopathic doctor. I have portal hypertension as well so my GI system has been compromised for some time. I will probably have to remain on this low histamine diet/blockers indefinitely due to my PHT; further complicates my food tolerance issue. My doctors will continue to test my Chromogranin A levels; my new routine bloodwork. Most of all, I am learning to keep my stress levels down. The PET scan process alone was an extremely stressful & worrisome process not only for me, but for my family as well. Staying active definitely helps me remain more positive & in a better mindset. Best to you & your health.

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