← Return to Treatment options for Dysautonomia

Discussion

Treatment options for Dysautonomia

Autoimmune Diseases | Last Active: Oct 3, 2022 | Replies (47)

Comment receiving replies
@loribmt

Joanne, golly, your life is hugely disrupted by all of these unexplained symptoms and it’s understandable to be so frustrated after countless visits to specialists and still no answers. I’m sorry you’re having to go through all of this…I can’t even imagine. And sadly, yes, because there are millions of people annually trying to get into Mayo Clinic and only so many slots open, the demand is out reaching the availability of appointments. You’re not being dismissed so don’t lose hope. Keep trying because there are always cancellations and schedule changes.

But you just said sometime in your first paragraph that caught my eye. About possibly having Covid late Dec 2019.
Were you ever tested to see if you have Covid 19 Antibodies?

With the timing on all of these symptoms you could possibly be a Covid Longhauler. A lot of your symptoms have been presented by members who’ve had Covid and are suffering unexplained illnesses such as neuropathy, lung issues, cardiac, optic issues, etc.

Here’s a link to the group if you’ve not already visited. If you’ve already done so, then I apologize for missing that in your earlier discussions. It might be worth exploring and getting tested for covid antibodies. There are post-covid recovery clinics for Long haulers. Just a thought.

https://connect.mayoclinic.org/group/post-covid-recovery-covid-19/

Jump to this post


Replies to "Joanne, golly, your life is hugely disrupted by all of these unexplained symptoms and it’s understandable..."

I've been trying to explain to all these different doctors over the last 1.8 years that I fully believe that it was the covid virus that my husband and I both had in late November 2019 all through December. We had the exact symptoms of this virus yet the doctors did not know about it and they just classified it as an unknown respiratory virus. Many people that I know several that lived in China at the time said that this virus was spreading through China as early as May 2019 yet the communist government of China cap it quiet and there's no doubt that's what my husband and I both had. I tried to explain this to the American doctors but they just do not want to listen they just think just because covid was not here until January 2020 that there's no way I could have had it in the end of November 2019. They're very very stubborn doctors. And yes I did have the antibodies test for covid and it came back negative and my doctor said that's because if I had covid in the end of November 2019 that the antibodies would have been long gone by now.