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WOW-thank you for this video. I have full body-pain-stinging-burning-parathesias-fasciculations-cramping-Multiple tests-MRI’s-skin biopsy-50 tubes of blood later-still no answers?? No surgeries-no impressive back issues-no diabetes. Only symptom is low IGM 35 and my mom had neuralgia. I have a wonderful GP-but his suggestion (after many tests)is-you can spend the rest of your life looking for an answer or let me treat your pain.
So I see a counselor- take 900mg of gabapentin and 30 mg of Nortripline. I question the gabapentins effectiveness. I tiered down from 1800mg.to 900mg. The Nortripline helps me sleep and cuts the pain a little. Trying to explain this to my family is so hard. I feel the constant need to tell them about my pain. They must be so tired of hearing it but they love me.This video is priceless-thank you.I am “Tired”-of hearing -“But you look so good”- When I don’t even recognize this body with all its wires crossed.
Replies to "WOW-thank you for this video. I have full body-pain-stinging-burning-parathesias-fasciculations-cramping-Multiple tests-MRI’s-skin biopsy-50 tubes of blood later-still no..."
Hello and thank you for your comments!
Unfortunately most people get tired of our pain, they do not want to hear about it and they don’t understand it even if you have the most clear diagnosis through MRI and blood tests
They say they do but they don’t and they get tired.
I’ve had brain surgeries, brain radiation, blood tests showing RA factor, swollen joints, ankles, pale skin and the list goes on with recently lesions in the liver
People still finds me looking great ( I try ) and my best friend cut me off just a week ago when I tried to share scary result from my recent lver US
I decided to kit share anything else
If I die they will find out haha
I aplogize for sounding so pessimistic and almost sour but what I mean is that we must try to not tire people with our pains. It makes them feel uncomfortable and frustrated because they don’t know what to say since they can’t help us and if they are our loved ones they also suffer along with us
Many of us are disable, we need their help. They will help, they just don’t want to hear us whining
@noanswers Hello. I'm so happy you found Dr. Sletten's video on Central Sensitization helpful, and that it provided you some answers to your long awaited questions. Your GP was spot on.
Have you considered attending the Mayo Pain Rehabilitation Center?
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
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Have you seen this discussion? https://connect.mayoclinic.org/discussion/mayo-pain-rehabilitation-program/
Many of us suffer from explained or unexplained pain that can be traced back to crazily overactive nerves, Centralized Sensitization Syndrome (CSS) and have benefited from consultation with a pain management clinic or doctor, who can teach us many strategies to manage and live with pain.
Have you seen a pain management doctor?
Sue