I can understand having guilt due to so much attention needs to be taken to deal with these health issues.

I can tell you that if you look around, there are always people who have it worse than we do. You can be empathetic to their plight and help out with a smile and a look in their eyes as you encounter them. It’s so easy to just look away because we don’t want to interact or acknowledge their physical disability. But they are like us, we who have the invisible disabilities which are no less difficult. Treat yourself with kindness!

I found a book called “Chronic Babe 101: How to Craft a life beyond Illness” that really tells it like it is. I bought it on Amazon for my Kindle.
Jenni Grover starts by reminding us that our illness is not our fault.

Each chapter has lessons for us to do. One involves having a 10 minute pity party. Set the timer, yell, scream,
stomp your feet or whatever you feel like doing to get that anger and frustration out that often comes about when you have a chronic disease. When the timer goes off, end of pity party!

Venting about your feelings here is a great help, because in some measure we understand and can relate to your pain and heartache. Hang in there!!