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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@cameron2020

My husband received the Pfizer vaccine (both shots). He has been notified to come and get the booster. He is 85 and a former hospice patient. I received both Moderna vaccines and have no idea when I will be able to get a booster. i am 88 and have PN. I function at a a very high level both mentally and physically, live and take care of my self as I always did. I'm just holding steady until the Pharm. Co, and the CDC/FDA get it together for Moderna. I will be getting my Flu shot in a couple of days. Re PN: I have numbness in both feet & both knees, worse at night; relieved by a spray that contains, menthol and some herbs. It helps me to sleep. Feel better after walking. i only take 100 mg of Gabapentin at night. i will not take more because i seem to have gotten some balance problems, dizziness, and feeling of not being in control. I have not seen a neurologist. if what I have rad about PN, I can look forward to getting worse.

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Replies to "My husband received the Pfizer vaccine (both shots). He has been notified to come and get..."

Good for you. I loved reading that you function at a very high level both mentally and physically. That is certainly my goal. I have Small Fiber Neuropathy (SFN) and quite a few cognitive decline issues. And yet, I find joy in every day. I just had my second Total Knee Replacement and am learning to go up and downstairs right now. Balance and stability are my daily exercise goals.

My life partner and I will get our COVID booster shots next Tuesday. I hope Moderna becomes available for you soon.

You mentioned the progressive nature of neuropathy. I can certainly begin to feel like there is no going back to a quieter time. We just need to make sure the treatments and medications continue to develop for us.

100 mg of Gabapentin sure is a very low dose. Does that ensure a good night's sleep? Do you have tingle tangles in your hands, wrists and arms? Gabapentin is the best for that issue. Unfortunately, it also makes me a bit fuzzy. What else have you found to be successful?

May you and your husband have happiness and the causes of happiness.
Chris