@kaykuz posted a message about the progression of her bronchiectais in hopes of finding support from others in the group. Here is her message, shared with her permission:

Hi Sue...I have been on the site for a while. For some reason I can't find how to post and this would be too long I think....Anyway I wanted to ask you a few questions...I was diagnosed with Bronchiectisis and MAC 6 years ago....I took the big 3 for a year and did well...But now MAC has returned....Just had a cat scan and sputum cultures....My scan a year ago Oct 22 nd had no change and I was so happy....I have had 5 flare ups since Nov of last year.. and I think that caused damage to my lungs as the scan showed the source of infection was the right middle lobe....bronchial wall thickening, bronchiolitis in both lungs. complete chronic atelectais of the right middle lobe with a few new clusters of bronchiolitis in bilateral lower lobes... Just did a sputum culture and he wants to see if MAC still there....I am sure it is....Then he wants me to see the the ID Doc....which I have seen twice...last two years...not this year.
He also has suggested the vest.....I do not cough up mucus or cough unless I have a flare up....Did you ever do the vest? I have done the 7% for two years along with albuterol. I think I'd rather go on the meds than the vest.....
My doctor is at Cleveland Clinic and I also have a pulmonary doc in Fl where we winter for 7 months...
Thank you for your time and I hope to hear from you...
Kaye

If anyone (especially long-time bronchiectasis people and vest users) are willing to reach out, I am sure she would appreciate it. Please tag Kaye by including @kaykuz in your post so she will be sure to see it.
Sue

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