It is actually an auto immune disease, not “caused by”. There are many Auto immune diseases. I don’t say this to correct you in anyway, only to inform you. There is no known cause for CIDP and it is not curable. After I was diagnosed with CIDP I was subsequently diagnosed with Sjögren’s syndrome. Reynauld’s phenomenon, Fibromyalgia and one other that is small and in which the symptoms cross over everything else. Impossible to isolate by symptoms that I might feel. CIDP is indeed a very rare disease and is listed under the NIH as such. I have actually really found not much information (in comparison to time spent searching) other than what I responded to the first person asking if anyone else had it. Phoenix Arizona is a city of approximately 5 million people including suburbs and we do not have our own chapter of GBS/CIDP. If you can find a chapter in your local area, (chapters are listed at NIH.gov), I would most definitely try that first. The difference between GBS and CIDP is that GBS is a remitting form of this disease so it may be active for a some time and then in remission for a time, ranging from months to years. CIDP is a chronic degenerative form of the disease. ALSO an EMG Is the defining test by which to verify CIDP. If you have not had one of those I suggest you try another neurologist, with specialty in CIDP, GBS, POTS syndrome etc. I hope this is helpful and I wish you the best of luck. There’s also one key element left out of most discussions, websites etc. everywhere. I had to ask my doctor in fact exactly what did it do. If you want more information please let me know I’m happy to help.